What would be your priority for research into coeliac disease and other gluten related autoimmune conditions?
Coeliac UK’s Priority Setting Partnership (PSP) on coeliac disease, launched in May 2017, aims to find the top ten research priorities for coeliac disease agreed by patients, their carers and healthcare professionals. The PSP embraces the importance of everyone having the opportunity to have their voice heard, as no one understands coeliac disease better than those who live with the condition and those who care for them.
The first survey received more than 2500 questions about coeliac disease and other gluten related autoimmune conditions. These questions have been summarised into 43 research questions and a second survey now offers you the opportunity to select and rank the ten questions that mean the most to you. Please have your say now:
The survey will close Monday, 15 January and the results will be taken to a one day workshop in London, 1 February 2018. At the workshop, patients, people who care for them and healthcare professionals will jointly agree the top ten list of research priorities.
For more information, please see the Coeliac UK website.
David Sanders ‘coeliac disease affects 1% of the population and currently ¾ are undiagnosed! Furthermore, many aspects of their care maybe sub-optimal. Your views are essential to give guidance to the charity on where their research priorities should be focussed thanks so much for taking the time to complete this survey.’
Notes to Editors
For further information contact, Marcia McKnight on 020 7935 2815 or email firstname.lastname@example.org
The British Society of Gastroenterology is an organisation focused on the promotion of gastroenterology within the United Kingdom. It has over three thousand members drawn from the ranks of physicians, surgeons, pathologists, radiologists, scientists, nurses, dietitians, and others interested in the field.
Founded in 1937 it has grown from a club to be a major force in British medicine, with representation within the British Royal Colleges and consequently the Department of Health and Government. Internationally it is represented at World and European level.