Data and Reporting
Biologics Audit 2018-19
CAP Update
IBD Registry at the BSG Annual Conference 2018
New Home in Epsom

Data and reporting

We’re very happy to say that numbers are continuing to rise steadily. As of the April 2018, the Registry contained 42,276 patient records submitted by 62 hospitals (up from 55). Thank you to all our submitting sites for their hard work and contribution.


Biologics Audit (Quality Accounts 2018-19)

As participants are aware, the IBD Audit is on the Quality Accounts list (an annual report each Trust must provide as a demonstration of various aspects of quality of care).  The IBD Registry has defined and facilitates capture of the KPIs that make up the IBD aspect of Quality Accounts. Sites who participate in this aspect of the IBD Registry receive an additional reporting element each quarter that allows their Trust to see their site’s specific performance in IBD care, set against national benchmarks. We invite Trusts who are not already participating in this benefit of the Registry to contact us ( to start taking part in time for next year’s Quality Accounts report (due end of June 2019).  

CAP update … expecting news soon

The IBD Registry has been working hard with the Confidentiality Advisory Group (CAG) to arrange the transfer of data controller status from the BSG to the new company IBD Registry Ltd.  The Clinical Audit Platform (CAP), to which sites upload their data for onward submission to the Registry, will be available again once this process has been completed. We anticipate the decision on this step by the end of August, and if positive, sites will be able to resume uploads in early September.  To catch up with our data, we would very much like to target the first two weeks of September for data upload and encourage sites to make preparations towards this window.

IBD Registry at the BSG Annual Conference 2018

Videos to watch, presentations to view

The new Registry team enjoyed the BSG annual meeting. We were delighted by the number of visitors to our stand and Liz Dobson (CEO) took the opportunity to meet many clinicians involved in delivering care of patients with IBD. The Registry was pleased to have provided the data for a number of scientific presentations at the meeting, which are available on the Registry's website, along with video interviews about many facets of the Registry – see:

We would particularly like to thank the BSG for the session commemorating the life of Richard Driscoll and his influence on so many aspects of improving the lives of patients with IBD. We look forward to continuing the work to realise his vision.

Other news

The Registry has a new home in Epsom

In line with our new independent status, and with a growing number of staff to accommodate, we have moved offices to The Conference Room, Ebbisham Centre, 6-7 Derby Square, Epsom KT19 8AG (telephone 020 393 3963)

To close, two ‘did you know’ health facts about Epsom?  not only still the home of natural Epsom Salts but also the home of one the largest specialist hospital clusters in its day (mental health) – 5 hospitals built in the late 1890s, to ‘alleviate overcrowding in the London Hospitals’ by housing 12,000 patients.  

With our thanks for your continued contribution to the IBD Registry,