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EoE/EGID and COVID-19 – an urgent world-wide data collection

Updated on: 01 Apr 2020   First published on 26 Mar 2020

Author:

The recent surge in cases of COVID-19 throughout the world and its severe impact on global healthcare have highlighted the need for the rapid accumulation of data pertaining to subpopulations infected with the virus in order to allow for the development of disease/treatment specific clinical recommendations.
This platform has been developed to collect information on patients previously diagnosed with Eosinophilic Esophagitis (EoE) and Eosinophilic Gastrointestinal Diseases (EGID) who are under high suspicion or confirmed with a diagnosis of COVID-19.

We encourage practitioners world-wide to report ALL confirmed cases (including asymptomatic cases identified by through public health screening) and severe cases for whom COVID-19 has not been confirmed because of the lack of available testing (these will be listed as unconfirmed in the questionnaire).
This case report form should be completed after the patient has had COVID-19 for a long enough duration to experience partial or complete recovery, hospitalization, or death.

Key Points

  • This is an international effort – EoE/EGID are rare conditions and only with international cooperation will we be able to gather enough information.
  • This data collection contains only de-identified data in accordance with HIPAA Safe Harbor De-Identification standards.
  • The study has been approved by the Schneider Children’s Medical Center of Israel IRB.

This data collection has been endorsed internationally by:

ESPGHAN EGID working group – European Society for Gastroenterology Nutrition and Liver Disease
CEGIR – Consortium of Eosinophilic Gastrointestinal Disease Researchers
EUREOS – European Consortium for Eosinophilic Diseases of the GI tract
NASPGHAN – North American Society for Pediatric Gastroenterology Nutrition and Liver Diseases
UEG – United European Gastroenterology

Click here to report a case of COVID-19 in an EoE/EGID patient

If you have any questions, please reach out to [email protected]


Noam Zevit MD (Pediatric Gastroenterologist, Schneider Children’s Medical Center of Israel)
Evan Dellon MD, MPH (Gastroenterologist, University of North Carolina at Chapel Hill)
Mirna Chehade MD, MPH (Pediatric Gastroenterologist, Icahn School of Medicine at Mount Sinai, New York)


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