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Improving diagnosis of Bile Acid Diarrhoea – BAD UK

BAD UK  – Bile acid diarrhoea UK Charity

Authors and Institution

Charity Trustees:

Professor Ramesh Arasaradnam
Michelle O’Connor
Nicola O’Connell
Alex Hardwick

Charity Associates:

Dr Nidhi Sagar
Nealee Hardwick
Lawrence Kelman

Challenges

Bile acid diarrhoea (BAD) affects an estimated 1% of the population with 1:4 patients with IBS also demonstrating evidence of BAD1,2. Despite its high prevalence and significant effect on quality of life, there remains little awareness and knowledge of BAD.

At UHCW, we recognised this needed to change to improve earlier diagnosis and reduce delays in initiating effective treatment. This would result in improved patient satisfaction, reduced morbidity and increased quality of life.

How we managed the challenges

We founded BAD UK, a patient-centred charity supported by clinical expertise to address the unmet need of raising public and health professional awareness, educating patients and their families to enable self-management of the condition and allowing patients to share their experiences of BAD and provide emotional support to each other.

Evaluation and Outcomes

Outcomes included the charity increasing awareness of the condition to health professionals by providing educational resources, equipping patients with the knowledge and confidence to self-manage their condition, building a local patient group network to provide support between patients and families and adopting a holistic approach to management by providing clinical/dietetic/psychological and pharmacological support. The charity also aims to raise funds to support research in BAD and is linked to the UK BAD network of clinicians/researchers as well as being affiliated with GUTS UK charity. A BAD patient and public involvement group is being set up and led at UHCW.

Learning Points

This patient-centred forum is a professional network of support and provides a more holistic approach to the management of BAD, allowing more time for allied health professionals to educate and support patients and their families, which is not always possible in time-constrained clinics. It also provides patients with the confidence and knowledge to self-manage their condition.

Additional Information

In conjunction with BAD UK, an online survey of patient-reported symptoms and outcomes was published in BMJ Open Gastroenterology:

Bannaga AKelman L, O’Connor M et al. How bad is bile acid diarrhoea: an online survey of patient-reported symptoms and outcomes. BMJ Open Gastro. 2017 Jan 19;4(1).