Sections News

IBD Registry News: April

QUARTERLY DATA SUBMISSION

The next quarterly data submission deadlines are 31st March and 30th June. If you need any help at all in preparing for this, please contact Data Manager Mark Allan by emailing This e-mail address is being protected from spambots. You need JavaScript enabled to view it

REGISTRY PARTICIPATION

Participation continues to grow, with 91 sites now set up to enter data into the IBD Registry, and over 24,900 patient records submitted. If you have not yet registered to participate in the IBD Registry, would like help uploading your data, or have any other registry related queries please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

TRUSTS IN ENGLAND – EARLY BIRD DISCOUNT ON AUDIT SUBSCRIPTIONS EXTENDED TO 30th APRIL

We've had an encouraging response to the request for subscriptions from Trusts in England to help the BSG maintain the Biologics Audit now that NHS England funding has been withdrawn.

At £2,500 per annum, the subscription is significantly less than the cost of one patient on biologics treatment for a year. Subscribers will receive benchmarked quarterly reports on the Biologics Audit KPIs focusing on quality improvement topics recommended in the last RCP Biologics Report. Later in the year, it is our intention to include reporting of HES data in relation to the Biologics data.

The BSG has offered to reduce the cost in the first year by 40% if a Trust provides a purchase order by 30th April 2017. We have written to the Chief Executives of all Trusts in England explaining the new arrangements for the Biologics Audit, putting the subscription cost in the context of overall expenditure on biologics for IBD, and reminding them that participation in the Audit is part of the NHS England Quality Accounts requirement.

Some teams have contacted us about submitting data to the IBD Registry if their Trust decides not to subscribe to the Audit. At present, you will still be able to submit data, but the Registry will not be able to provide the Trust with the benchmarked Biologics Audit reports. A copy of the letter to CEOs is available on request to This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

IBD Registry 2017 roadshow dates announced

  • Mon 15th May Exeter
  • Thurs 18th May Cardiff
  • Fri 19th May Sheffield
  • Mon 22nd May Warrington
  • Tues 23rd May Darlington
  • Fri 2nd June London
  • Fri 9th June Birmingham
  • Autumn 2017 Glasgow

A series of half-day meetings to support clinical teams as they join the IBD Registry. The sessions provide protected time for teams to learn about the Biologics Audit and QI programme using the IBD Registry, and to develop local plans for Registry adoption. Each meeting will be tailored to local needs and aim to provide information, support and hands-on guidance. Experts from the Registry will be on hand to answer questions, and interactive workshops will provide practical support for teams to work together to develop your own plans. Free to attend due to generous industry sponsorship.

 

IBD QI: Supporting teams to improve care in inflammatory bowel disease

  • Would you like to gain a better understanding of how to interpret the findings from your data?

  • Learn how to facilitate changes and improvements in patient care?

  • Become a quality improvement champion for IBD?

If yes – then you are invited to attend a quality improvement course consisting of 3 one day workshops, plus support webinars, over 6 months between June and November 2017.

Who is the course for?

This course has been specifically designed for teams specialising in inflammatory bowel disease.
The first 25 places will be funded via the Royal College of Physicians.

We invite you to attend in teams of three or four, ideally a physician, a manager and one other health care professional and/or a patient. Applications for individual attendance will not be possible.

What do I need to do?

Teams should have identified one area of care within their service where national benchmarked data shows the need for improvement.
You need to plan to come as a team for the entire course (see dates and venues below)
Teams must be committed to meet at a minimum fortnightly, to progress their project during the improvement collaborative.

When and where?

The course runs over 3 separate days. All will be held at a venue in central London

  • Day 1 – Tuesday 6 June, Holiday Inn Regent's Park, London
  • Day 2 – Wednesday 13 September
  • Day 3 - Wednesday 1 November

Costs?

The estimated cost of the course is £750 but we will cover the cost for the first 25 people who book to come on this course. This is a great opportunity and will not be subsidised in the future.

You will only need to cover your travel and, where necessary, accommodation costs.

Whilst we are very pleased to offer to subsidise the fees of the first 25 bookings, attendees will be liable for any course fees should they fail to attend.
To find out more about the course please see below.

How to book?

If you are interested in attending this course please contact ( This e-mail address is being protected from spambots. You need JavaScript enabled to view it )
You will need to provide the names, job titles, NHS trust and contact details of the team you plan to bring.
Final date for booking: 1st May.

IBD Registry: January Headlines

  • Participation continues to grow, with 85 sites now set up to enter data into the IBD Registry, and over 22,893 patient records submitted. If you have not yet registered to participate in the IBD Registry, would like help uploading your data, or have any other registry related queries please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it
  • The RCP audit now has closed so IBD teams need to export their data if they haven't already done so.
  • A data visualisation module for the Registry Web Tool will be piloted soon.
  • NHS England has included the IBD Registry Biologics Audit on the Quality Accounts list for the coming year.
  • Trusts in England are being asked for a £2,500 subscription fee to help the BSG cover the costs of the Biologics Audit. Trusts responding by 15th March will benefit from 40% discount.
  • To help you get the most out of Registry participation, the IBD Registry 2017 Roadshow will visit Birmingham, Cardiff, Darlington, Exeter, London, Sheffield and Warrington in May/ June, and Glasgow in the autumn. Register your interest at http://ibdrroadshow2017.eventreference.com/
  • A PhD opportunity at University of Liverpool on record-keeping in patients with IBD using electronic patient record systems is open for applications until 13th February https://www.findaphd.com/search/projectDetails.aspx?PJID=82615

UK IBD Registry ends year on a high note

We approach the end of the year with 60 sites actively participating in the IBD Registry, and over 21,000 patient records submitted. 80 sites in total have a 'live' system for data capture, and 21 additional sites are in the process of setting up, so we expect patient numbers to increase steadily.

Members of the Registry's industry working group have generously contributed to a fund specifically to support sites with data entry. For more information please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it by 20th January 2017.

Many thanks to our colleagues at AbbVie, Allergan, Dr Falk, Janssen, Napp, Pfizer, Takeda, Tillotts and Vifor for their contributions to this fund. If you have not yet registered to participate in the IBD Registry, would like help uploading your data, or have any other registry related queries please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

*Grants may be higher depending on the number of sites applying.

 

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