Sections News

BSG response to NICE consultation on biologics

Professor Chris Probert, Chair BSG IBD Section Committee

The BSG has responded to NICE's interim evaluation of whether infliximab, adalimumab and golimumab should be available for patients with moderate to severe ulcerative colitis. The response was drawn up with input from members of the IBD Committee as well as Section members who approached us because of their particular expertise. We are very grateful for their time and effort on behalf of our patients.

Our response as key stakeholders runs in parallel with responses from ACP, RCP, the IBD Nurses and CCUK. The patients themselves have arranged an e-petition with roughly 2000 signatures. I think jointly we have expressed our views very strongly. This issue is unlikely to be resolved in the next few months, in the meantime NICE are considering Vedolizumab, so watch this space.

New Evidence Update on Crohn's disease from NICE

An Evidence Update on Crohn's disease has been published by NICE.

NICE Evidence Updates help to reduce the need for individuals, managers and commissioners to search for new evidence and keep health and social care professionals up-to-date with new research. While Evidence Updates do not replace current accredited guidance and do not provide formal recommendations, they do highlight new evidence that health and social care professionals may wish to consider alongside current guidance.

The new Evidence Update focuses on a summary of selected new evidence relevant to NICE clinical guideline 152 'Crohn's disease: management in adults, children and young people' (2012).

Feedback on the Evidence Update may be sent to This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

IBD audit reports (25 September 2014)

Commenting on the UK audit of Inflammatory Bowel Disease (IBD) service provision, carried out by the Royal College of Physicians, British Society of Gastroenterology (BSG) IBD Section Chair, Professor Chris Probert said:

"The Audit shows a number of key improvements in IBD services across the UK, however there is still a long way to go in developing the quality of services in specific areas and we have been overwhelmed by the support of our members to achieve this.

"With diagnoses of IBD on the increase there is absolutely no room for complacency and it is absolutely vital that gastroenterologists, nurses, surgeons and others who deliver care for IBD patients learn from the Audit in order to deliver the change that patients deserve.

"The BSG will continue to play a leading role in developing and promoting a national IBD strategy which seeks to harness the collective benefits of the Audit, the IBD Registry and the IBD Standards. In addition, we also have to look at new patient referrals from a primary care setting – one concern is that in some areas IBD services are being burdened by unnecessary referrals for irritable bowel syndrome which could have been prevented by the utilisation of new tests available to primary care at an earlier stage.

"As a profession we wholeheartedly welcome the progress made by the Royal College of Physicians' IBD Audit which is a fundamental aspect of measuring and developing services, and we look forward to continuing our work with the College and patient charities such as Crohn's & Colitis UK to improve IBD services across the UK."

Crohn's and Colitis UK Medical Research Awards 2015

Applications are invited for the year 2015 grants to be awarded by Crohn's and Colitis UK. Research Projects may be directed towards any aspect of Inflammatory Bowel Disease. Funding will be awarded for periods of up to two years. The grants awarded will normally be up to a maximum of £120,000. Applications for pilot studies under £10,000 are also encouraged.

Closing date for this award will be 27th October 2014.

IBD Registry Preliminary Data Presented

At BSG 2014, Clinical Lead, Dr Fraser Cummings presented the first data on over 4000 patients from the UK IBD Registry. This presentation gives an idea of the trends that can be observed using Registry data, such as patients' smoking status or medication. One important development is the linkage with Hospital Episode Statistics (HES) data, which shows healthcare utilisation, e.g. the number of outpatient appointments and A&E admissions each year.

Early Adopters' Lead, Dr Matthew Johnson provided practical advice on using the Registry Patient Management System (PMS) to support patient care, and explained how he and his team at Luton and Dunstable University Hospital have successfully used the system to fund an additional IBD specialist nurse.

We also launched our new Registry Information Pack, a step-by-step guide to joining the IBD Registry, including information for clinical teams, IT and Caldicott Guardians as well as an example business case, PMS screen shots and letters.

Setting the Registry within the broader context of raising standards in IBD, the panel also included Professor Mark Baker, Director of the NICE Centre for Clinical Practice, Dr Ian Arnott, Clinical Lead of the UK IBD Audit and David Barker, Chief Executive of Crohn's and Colitis UK and Chair of IBD Standards and Dr Stuart Bloom, Chair of IBD Registry.

Summing up the meeting, Crohn's and Colitis UK Chief Executive, David Barker commented: "The work of the IBD Standards, Audit and Registry are really critical in terms of driving up standards of care for patients."

To find out more about joining the Registry email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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