IBD Registry PMS Released
Following the pilot stage earlier this year involving clinical teams from Luton and Dunstable, Norfolk and Norwich, and St George's paediatrics, the IBD Registry Patient Management System (PMS) delivered by InfoFlex, has been further refined to ensure it effectively supports clinical teams in delivering safe, high-quality, patient-centred care as part of an effective gastroenterology service.
The IBD Registry Board and CIMS are delighted to announce that the PMS is now available for release to early adopters. Registry Board Chair Stuart Bloom commented, "we're very grateful to our pilots: Matthew Johnson, Mark Tremelling and Sally Mitton, for their invaluable input. Our Clinical Lead Fraser Cummings, has done an excellent job working with CIMS, and supported by Stephen Grainger, to hone the PMS so that it is easy to use and really delivers local clinical utility."
Stuart will present the first tranche of data from the registry at the BSG Annual Meeting in June 2014.
Inflammatory bowel disease biopsies: updated British Society of Gastroenterology reporting guidelines.
Professor Roger M Feakins
Accurate histopathological assessment of biopsies is important for the diagnosis, subclassification, and management of chronic idiopathic inflammatory bowel disease (IBD). British Society of Gastroenterology (BSG) guidelines for the initial histopathological diagnosis of IBD were published in 1997. Changes since then include: more widespread use of full colonoscopy; greater recognition of the effects of time and treatment; improved documentation of variations in anatomical distribution; better understanding of the mimics of IBD; significant progress in clinical management; and modifications of terminology. Accordingly, an update is required. These revised guidelines aim to optimise the quality and consistency of reporting of biopsies taken for the initial diagnosis of IBD by summarising the literature and making recommendations based on the available evidence. Advice from existing clinical guidelines is also taken into account. Among the subjects discussed are: distinguishing IBD from other colitides, particularly infective colitis; subclassification of IBD (as ulcerative colitis, Crohn's disease, or IBD unclassified); the discriminant value of granulomas; aspects of disease distribution, including discontinuity in ulcerative colitis; time-related changes; differences between paediatric and adult IBD; the role of ileal and upper gastrointestinal biopsies; differential diagnoses such as diverticular colitis and diversion proctocolitis; and dysplasia. The need to correlate the histological features with clinical and endoscopic findings is emphasised. An approach to the conclusion of an IBD biopsy report based on the acronym Pattern, Activity, Interpretation, Dysplasia (PAID) is suggested. The key recommendations are listed at the end of the document.
- Download guideline [ 1.3 Mb ]
IBD Nixon Twin and Multiplex Registry
IBD Registry Update
The first of three pilot sites for the UK IBD Registry started trialling the system on Tuesday 15th January. Launching later this year, the Registry will provide the first ever UK-wide repository of anonymised IBD patient data for prospective audit and research. By bringing this data together for the first time, the Registry Board aims to:
- Provide local, regional & national data in order to better define the pattern of ulcerative colitis and Crohn's disease
- Improve understanding of long term outcomes
- Drive continuous improvement in patient care and access to care across the UK
- Inform commissioning and service design
- Support IBD research
Data can be entered either from existing databases, via a web portal, or by means of a new IBD Patient Management System (PMS), which has been developed by Chameleon Information Systems Ltd (suppliers of InfoFlex) under the guidance of Clinical Lead, Fraser Cummings. Fraser and his team have designed the PMS so that data can be easily entered during the consultation. The PMS will also provide real-time benefits such as a clinical summary of each patient at a glance, to save time leafing through paper notes, and work lists to support, for example, azathioprine monitoring, biologics follow-up or MDT meetings. Subject to local IT arrangements, the PMS can also be integrated with local PAS to further minimise data entry.
The pilot stage is due to run till March, and the launch of the Registry is scheduled for the BSG conference in June.
- Further information [ 77 kb ]
IBD Quality Improvement Programme
Following on from the success of IBD National Audits and the IBD Standards of Care, The Health Foundation is funding a new web-based tool (GRS) that will provide self-assessment for services to benchmark their care, as well as a repository of useful documents and data for services to adapt for use in their own Trusts. Regional Meetings have been set up to explain this further, please visit: http://www.ibdqip.co.uk/Default.aspx to find out if there is a meeting or a network set up in your region.
Page 1 of 2