Questions about applying to the EME researcher-led workstream?
New funding opportunity within the EME programme
The EME Programme is accepting applications to its commissioned workstream for stratified medicine in non-cancerous conditions. The call closes on 3 June 2014. Anyone interested can register for a webinar on 25 March 2014 to learn more about the call. Further information about the EME programme remit, the commissioning brief and tips for making a successful application are available from the EME website. NETSCC strongly advises that potential applicants collaborate and plan - successful EME applications generally involve strong collaborations between an academic unit and/or NHS organisation and/or industry. Build a strong team and start to prepare your bid using your combined expertise.
You can also develop new partnerships by attending a stratified medicine event co-hosted by the EME Programme and the NIHR Office for Clinical Research Infrastructure (NOCRI) on Tuesday 1 April 2014 in central London. At this event, you will
learn from people in industry about their experience working with the NHS and researchers
hear researcher perspectives on partnering to take advantage of EME research funding awards
meet with potential partners to establish collaborations and take your funding application forward.
More information will be available later this month.
IBD Nixon Twin and Multiplex Registry
IBD Registry Update
The first of three pilot sites for the UK IBD Registry started trialling the system on Tuesday 15th January. Launching later this year, the Registry will provide the first ever UK-wide repository of anonymised IBD patient data for prospective audit and research. By bringing this data together for the first time, the Registry Board aims to:
- Provide local, regional & national data in order to better define the pattern of ulcerative colitis and Crohn's disease
- Improve understanding of long term outcomes
- Drive continuous improvement in patient care and access to care across the UK
- Inform commissioning and service design
- Support IBD research
Data can be entered either from existing databases, via a web portal, or by means of a new IBD Patient Management System (PMS), which has been developed by Chameleon Information Systems Ltd (suppliers of InfoFlex) under the guidance of Clinical Lead, Fraser Cummings. Fraser and his team have designed the PMS so that data can be easily entered during the consultation. The PMS will also provide real-time benefits such as a clinical summary of each patient at a glance, to save time leafing through paper notes, and work lists to support, for example, azathioprine monitoring, biologics follow-up or MDT meetings. Subject to local IT arrangements, the PMS can also be integrated with local PAS to further minimise data entry.
The pilot stage is due to run till March, and the launch of the Registry is scheduled for the BSG conference in June.
- Further information [ 77 kb ]
IBD Quality Improvement Programme
Following on from the success of IBD National Audits and the IBD Standards of Care, The Health Foundation is funding a new web-based tool (GRS) that will provide self-assessment for services to benchmark their care, as well as a repository of useful documents and data for services to adapt for use in their own Trusts. Regional Meetings have been set up to explain this further, please visit: http://www.ibdqip.co.uk/Default.aspx to find out if there is a meeting or a network set up in your region.
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