Questions about applying to the EME researcher-led workstream?
New funding opportunity within the EME programme
The EME Programme is accepting applications to its commissioned workstream for stratified medicine in non-cancerous conditions. The call closes on 3 June 2014. Anyone interested can register for a webinar on 25 March 2014 to learn more about the call. Further information about the EME programme remit, the commissioning brief and tips for making a successful application are available from the EME website. NETSCC strongly advises that potential applicants collaborate and plan - successful EME applications generally involve strong collaborations between an academic unit and/or NHS organisation and/or industry. Build a strong team and start to prepare your bid using your combined expertise.
You can also develop new partnerships by attending a stratified medicine event co-hosted by the EME Programme and the NIHR Office for Clinical Research Infrastructure (NOCRI) on Tuesday 1 April 2014 in central London. At this event, you will
learn from people in industry about their experience working with the NHS and researchers
hear researcher perspectives on partnering to take advantage of EME research funding awards
meet with potential partners to establish collaborations and take your funding application forward.
More information will be available later this month.
IBD Registry PMS Released
Following the pilot stage earlier this year involving clinical teams from Luton and Dunstable, Norfolk and Norwich, and St George's paediatrics, the IBD Registry Patient Management System (PMS) delivered by InfoFlex, has been further refined to ensure it effectively supports clinical teams in delivering safe, high-quality, patient-centred care as part of an effective gastroenterology service.
The IBD Registry Board and CIMS are delighted to announce that the PMS is now available for release to early adopters. Registry Board Chair Stuart Bloom commented, "we're very grateful to our pilots: Matthew Johnson, Mark Tremelling and Sally Mitton, for their invaluable input. Our Clinical Lead Fraser Cummings, has done an excellent job working with CIMS, and supported by Stephen Grainger, to hone the PMS so that it is easy to use and really delivers local clinical utility."
Stuart will present the first tranche of data from the registry at the BSG Annual Meeting in June 2014.
IBD Nixon Twin and Multiplex Registry
IBD Registry Update
The first of three pilot sites for the UK IBD Registry started trialling the system on Tuesday 15th January. Launching later this year, the Registry will provide the first ever UK-wide repository of anonymised IBD patient data for prospective audit and research. By bringing this data together for the first time, the Registry Board aims to:
- Provide local, regional & national data in order to better define the pattern of ulcerative colitis and Crohn's disease
- Improve understanding of long term outcomes
- Drive continuous improvement in patient care and access to care across the UK
- Inform commissioning and service design
- Support IBD research
Data can be entered either from existing databases, via a web portal, or by means of a new IBD Patient Management System (PMS), which has been developed by Chameleon Information Systems Ltd (suppliers of InfoFlex) under the guidance of Clinical Lead, Fraser Cummings. Fraser and his team have designed the PMS so that data can be easily entered during the consultation. The PMS will also provide real-time benefits such as a clinical summary of each patient at a glance, to save time leafing through paper notes, and work lists to support, for example, azathioprine monitoring, biologics follow-up or MDT meetings. Subject to local IT arrangements, the PMS can also be integrated with local PAS to further minimise data entry.
The pilot stage is due to run till March, and the launch of the Registry is scheduled for the BSG conference in June.
- Further information [ 77 kb ]
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