Sections News

IBD Registry: January Headlines

  • Participation continues to grow, with 85 sites now set up to enter data into the IBD Registry, and over 22,893 patient records submitted. If you have not yet registered to participate in the IBD Registry, would like help uploading your data, or have any other registry related queries please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it
  • The RCP audit now has closed so IBD teams need to export their data if they haven't already done so.
  • A data visualisation module for the Registry Web Tool will be piloted soon.
  • NHS England has included the IBD Registry Biologics Audit on the Quality Accounts list for the coming year.
  • Trusts in England are being asked for a £2,500 subscription fee to help the BSG cover the costs of the Biologics Audit. Trusts responding by 15th March will benefit from 40% discount.
  • To help you get the most out of Registry participation, the IBD Registry 2017 Roadshow will visit Birmingham, Cardiff, Darlington, Exeter, London, Sheffield and Warrington in May/ June, and Glasgow in the autumn. Register your interest at http://ibdrroadshow2017.eventreference.com/
  • A PhD opportunity at University of Liverpool on record-keeping in patients with IBD using electronic patient record systems is open for applications until 13th February https://www.findaphd.com/search/projectDetails.aspx?PJID=82615

PhD studentship in Medicine: Characterising Fatigue in IBD

This fully-funded studentship will undertake very novel research to characterise fatigue in Inflammatory Bowel Disease. Fatigue is the most common symptom in active Crohn’s disease and the second most common complaint in remission. Fatigue may arise from peripheral and central processes. Peripheral fatigue is linked to reduced muscle mass and deconditioning and consequently reduced muscle function, while central fatigue may arise from attenuated cardiac output and diminished cerebral blood perfusion. The student will aim to deconstruct the roles of central and peripheral fatigue through 31P MR-spectroscopy-based experiments during within-bore exercise, while cardiac output and cerebral perfusion will be quantified using MR imaging under the same conditions.

The studentship is fully funded by the Joane Browne Legacy, with a start date of 1 July 2017. The studentship will be hosted by the newly £23.6M funded NIHR Nottingham Biomedical Research Centre with strong Gastroenterology and Musculoskeletal Research themes and a cross-cutting Advanced Imaging theme. The BRC is funded to to cover consumables for this project. The closing date is 28/2/2018. Interviews will be held in mid-March 2017. For further information on this studentship, please download the full advert.

forCrohn's Innovation Grant 2017

Background

forCrohn's is the UK's only charity solely dedicated to Crohn’s disease. Their mission is to fund research that helps those with the condition today and contributes to finding a cure for Crohn's disease in the future whilst making more people in the UK aware of the disease and its symptoms. They fund £80,000-100,000 basic science and clinical research annually in various specialist institutions.

Aim of the Innovation Grant

The aim is to support gastroenterology healthcare professionals to find new ways to immediately improve the lives of patients with Crohn's disease.

Funding

forCrohn's new innovation grant will be used to fund projects that demonstrate a clear and immediate benefit for Crohn's disease patients. Up to £10,000 will be awarded to successful applicants. The application process is open from 1 January 2017 - 13 March 2017.

Criteria of grant

All projects must meet the following criteria and will be judged against them:

  • An outcome which demonstrates a clear and immediate benefit for Crohn's patients (Whilst it is appreciated that many projects may have a dual benefit for those with UC, the charity's main aim is focused on the output for Crohn's)
  • A short expected time between study and implementation
  • Robust assessment of outcomes
  • Potential to scale nationally for pilot projects

For more information about the Innovation Grant and to download an application form, please go to http://bit.ly/forcrohnsinnovation

 

UK IBD Registry ends year on a high note

We approach the end of the year with 60 sites actively participating in the IBD Registry, and over 21,000 patient records submitted. 80 sites in total have a 'live' system for data capture, and 21 additional sites are in the process of setting up, so we expect patient numbers to increase steadily.

Members of the Registry's industry working group have generously contributed to a fund specifically to support sites with data entry. For more information please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it by 20th January 2017.

Many thanks to our colleagues at AbbVie, Allergan, Dr Falk, Janssen, Napp, Pfizer, Takeda, Tillotts and Vifor for their contributions to this fund. If you have not yet registered to participate in the IBD Registry, would like help uploading your data, or have any other registry related queries please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

*Grants may be higher depending on the number of sites applying.

 

Latest IBD Registry data submission and site numbers

As we approach the end of the year, the Registry team would like to thank all the IBD teams who have now joined the project for all their hard work. We've reached an important milestone in November with 20 sites now having submitted data, giving a total of 17,328 records. More records will be uploaded in December as we now have 44 teams who have completed their registration with NHS Digital. If you have data you’d like to upload and need any help at all please contact Mark at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Altogether, 176 IBD teams from across the UK have registered to participate, and there are 78 sites 'live' with a system for data capture, using a variety of different data entry methods (e.g. web tool, patient management system, local system etc). If you're in one of the teams that haven't yet registered please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it to find out more about joining in.

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