IBD Registry Preliminary Data Presented
At BSG 2014, Clinical Lead, Dr Fraser Cummings presented the first data on over 4000 patients from the UK IBD Registry. This presentation gives an idea of the trends that can be observed using Registry data, such as patients' smoking status or medication. One important development is the linkage with Hospital Episode Statistics (HES) data, which shows healthcare utilisation, e.g. the number of outpatient appointments and A&E admissions each year.
Early Adopters' Lead, Dr Matthew Johnson provided practical advice on using the Registry Patient Management System (PMS) to support patient care, and explained how he and his team at Luton and Dunstable University Hospital have successfully used the system to fund an additional IBD specialist nurse.
We also launched our new Registry Information Pack, a step-by-step guide to joining the IBD Registry, including information for clinical teams, IT and Caldicott Guardians as well as an example business case, PMS screen shots and letters.
Setting the Registry within the broader context of raising standards in IBD, the panel also included Professor Mark Baker, Director of the NICE Centre for Clinical Practice, Dr Ian Arnott, Clinical Lead of the UK IBD Audit and David Barker, Chief Executive of Crohn's and Colitis UK and Chair of IBD Standards and Dr Stuart Bloom, Chair of IBD Registry.
Summing up the meeting, Crohn's and Colitis UK Chief Executive, David Barker commented: "The work of the IBD Standards, Audit and Registry are really critical in terms of driving up standards of care for patients."
TNF-alpha inhibitors and TB
The Medicines and Healthcare products Regulatory Agency (MHRA) has issued a statement concerning the risk of tuberculosis with tumour necrosis factor alpha (TNF-alpha) inhibitor treatment. The MHRA published an article in the April issue of its monthly Drug Safety Update bulletin reminding healthcare professionals of the increased risk of tuberculosis in patients receiving TNF-alpha inhibitors, the recommendation for screening and monitoring patients, and that there is a patient alert card which should be given to patients. The article can be viewed on the MHRA website:
ECCO 2015: Challenging Cases
Present a challenging case at the ECCO Congress 2015 in Barcelona
SciCom opens the call for challenging cases for the ECCO Congress 2015 in Barcelona. Calls submitted should relate to one of the following three clinical dilemmas:
- Risk of cancer in chronic perianal disease
- Risk of infection occurring under biological treatment (anti-TNF, immunosuppressant)
- Loss of response to anti-TNF in paediatrics
Please note that your case does not necessarily need to be a rare case and can represent an everyday struggle.
In the selection process, priority will be given to cases reflecting one of the session titles. Please also consider how the case complements the overall programme.
CICRA Research Grants
The Crohn's in Childhood Research Association offers the following research opportunities.
Research Fellowship in Paediatric Gastroenterology: Applications are invited from interested centres in the UK - closing date for receipt of applications Thursday 6th November 2014
PhD studentship: CICRA invites applications from research groups with a proven track record of high quality output in gut immunology and inflammation or IBD genetics. Closing date for receipt of applications - Thursday 6th November 2014
Project grant: CICRA invites high quality research applications for funding up to £100,000 relevant to Crohn’s disease or ulcerative colitis in childhood. Closing date for receipt of applications Thursday 6th November 2014
Bursary grants: CICRA also gives grants of up to £400 (up to a total amount of £5,000pa) to enable UK based young Doctors still in training/nurses/final year medical students and similar persons with an interest in the area of Crohn's and colitis (IBD) to support attendance at national, international scientific/educational congresses and if considered appropriate IBD related training courses.
Application forms and further information can be obtained from the CICRA website: www.cicra.org
Questions about applying to the EME researcher-led workstream?
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