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NHS Do Once and Share Project - Inflammatory Bowel Disease

Requirements for an Electronic Care Record for IBD patients

Introduction

  • The Do Once and Share (DOAS) programme was set up by Connecting for Health (CfH), the department responsible for delivering the National Programme for Information Technology (NPfIT), to promote clinical engagement with plans for IT development
  • The DOAS programme initially set up 43 separate project teams to explore the IT needs for their disease specific areas.  IBD was selected as one of these 43 projects
  • We were given 6 months to consult with the IBD community and identify the requirements for an IT system and to explore the potential improvements in care that an IBD specific IT system could offer.  We are now midway through this process
  • Following initial input from a range of groups and interested individuals we have developed a basic outline for an IBD Electronic Care record, which we would now like to present to a much wider audience for consultation.  We would be very grateful if you could read the attached information and provide feedback using the web feedback form.

IBD Do Once and Share Website

Attachments:
Download this file (ibd_doas_prec.doc)Requirements for an Electronic Care Record for IBD patients[Notes and References ]58 Kb

IBD Standards

IBD Standards

Service standards for the healthcare of people who have Inflammatory Bowel Disease

The aim of these Service Standards is to ensure that patients who have inflammatory bowel disease receive healthcare that is safe, effective and of consistently high quality. Our organisations, representing patients and professionals, have collaborated in the IBD Standards Group to define for the first time what is required in terms of staffing, support services, organisation, patients’ education and audit to provide integrated, high-quality IBD Services.

National IBD Audit

 

The first national audit of the care of inflammatory bowel disease (IBD) in the UK has shown marked variation in the resources and quality of care.

The UK IBD Audit is the first UK-wide audit in gastroenterology and is a collaborative partnership between the British Society of Gastroenterology, the Royal College of Physicians, the Association of Coloproctology of Great Britain and Ireland and the National Association for Colitis and Crohn’s Disease. It is funded by a grant from the Health Foundation. The Clinical Lead for the audit is Dr Keith Leiper, Consultant Gastroenterologist at the Royal Liverpool University Hospital.