Health Professionals Survey – Fatigue and IBD

Marcia Darvell (Crohns and Colitis UK) and Professor Christine Norton (Buckinghamshire New University)

Crohns and Colitis UK have been awarded a £481, 242 grant by the Big Lottery Fund for a project on fatigue in IBD. The 4 year research project will examine the causes of fatigue and will pilot a fatigue assessment tool and interventions to improve the management of fatigue in IBD. The research is being carried out with our partners at Kings College London, University College London, Buckinghamshire New University and Addenbrookes NHS Trust.

The project is divided into a number of work packages. Currently, we have interviewed twenty volunteers with IBD. We will use these data to develop a fatigue assessment tool which we will pilot with people living with IBD.

To help us understand the level of awareness and information needs of fatigue in IBD among healthcare professionals, we distributed questionnaires at the BSG conference in 2011, and sent the questionnaire to IBD nurses as an online survey.

The survey has several limitations, particularly its self selected and relatively small sample (94 health care professionals). Despite this, the survey indicates a need for greater information on fatigue and IBD.

National IBD Audit

The UK Inflammatory Bowel Disease (IBD) Audit is the first truly national audit performed within gastroenterology and seeks to improve the quality and safety of care for IBD patients in hospitals throughout the UK. The audit investigates individual patient care, service resources and organisation against national standards. The work of the audit is directed by the UK IBD Audit Steering Group and is led by Dr Ian Arnott, Consultant Gastroenterologist at NHS Lothian

Any queries can be directed to Calvin Down, the UK IBD Audit Project Manager on 020 7935 1174 ext 566 or by e-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

IBD Standards

Service standards for the healthcare of people who have Inflammatory Bowel Disease

Documentation updated October 2013

The aim of these Service Standards is to ensure that patients who have inflammatory bowel disease receive healthcare that is safe, effective and of consistently high quality. Our organisations, representing patients and professionals, have collaborated in the IBD Standards Group to define for the first time what is required in terms of staffing, support services, organisation, patients‚ education and audit to provide integrated, high-quality IBD Services.

The starting point for this initiative was a UK-wide Audit in 2006 which confirmed that there was substantial local variation in the provision, organisation and clinical quality of IBD Services and that there were significant aspects of care that did not meet current clinical guidelines.

Sexual and Reproductive Health for Individuals with IBD

The Royal College of Obstetricians and Gynaecologists' Faculty of Sexual & Reproductive Healthcare has recently updated its guidance on Sexual & Reproductive Health for Women with Inflammatory Bowel Disease.

Below is a link to a PDF copy of the guidance:

Sexual and Reproductive Health for Individuals with Inflammatory Bowel Disease [ 672 Kb ]

IBD Quality Improvement Project

IBD teams are invited to sign up for the pilot phase of the Inflammatory Bowel Disease Quality Improvement Project. This Health Foundation funded project will run until September 2011 and is being carried out by the Clinical Effectiveness and Evaluation unit at The Royal College of Physicians. They are supported by a number of other specialist societies, within their steering group, including:

  • British Society of Gastroenterology
  • Association of Coloproctology in GB and Ireland
  • British Society of Paediatric Gastroenterology, Hepatology and Nutrition
  • Royal College of Nursing
  • British Dietetic Association
  • Crohn's and Colitis UK
  • Primary Care Society of Gastroenterology

The project has a pilot website (, which contains an assessment tool (based on National IBD Standards), for teams to benchmark their care. There is also a linked 'Shared Document Store' with documents and best practice, for services to download (and upload their own documents), to facilitate change management.

Invitations have been sent to all the IBD Clinical Leads (Adult and Paediatric Services), asking them to sign up for the pilot, by 19th November. We will then be selecting 30-40 sites and inviting them to regional meetings in Jan-Feb 2011. Sites will be asked to use the website and feedback to the project team in March – June 2011.

For further information please go to or contact Emma Fernandez at This e-mail address is being protected from spambots. You need JavaScript enabled to view it