Online Course: Feeding Difficulties in Children with Gastrointestinal Disorders
Wednesday, 01 October 2014 12:59
Although feeding difficulties are a common phenomenon in children with gastrointestinal disorders, symptoms are often not recognised early enough, preventing early management and the escalation of symptoms. It is important that healthcare professionals familiarise themselves with this topic, as difficulties may impact on both the child's growth and development as well as the wider psychological well-being of the child and family.
This teaching module explains current evidence as well as addressing some of the more practical issues of management, which may assist you in your daily practice.
CICRA Research Grants
Monday, 14 July 2014 14:31
The Crohn's in Childhood Research Association offers the following research opportunities.
Research Fellowship in Paediatric Gastroenterology: Applications are invited from interested centres in the UK - closing date for receipt of applications Thursday 6th November 2014
PhD studentship: CICRA invites applications from research groups with a proven track record of high quality output in gut immunology and inflammation or IBD genetics. Closing date for receipt of applications - Thursday 6th November 2014
Project grant: CICRA invites high quality research applications for funding up to £100,000 relevant to Crohn’s disease or ulcerative colitis in childhood. Closing date for receipt of applications Thursday 6th November 2014
Bursary grants: CICRA also gives grants of up to £400 (up to a total amount of £5,000pa) to enable UK based young Doctors still in training/nurses/final year medical students and similar persons with an interest in the area of Crohn's and colitis (IBD) to support attendance at national, international scientific/educational congresses and if considered appropriate IBD related training courses.
Application forms and further information can be obtained from the CICRA website: www.cicra.org
Paediatric European Digestive Diseases Clinical Research Network (PEDDCReN) Survey
Tuesday, 10 December 2013 14:20
Nick Croft, Julian Thomas, Nikhil Thapar (UK Members of the PEDDCReN Steering Group) and Varsha Tailor (PEDDCReN Project Manager) invite you to participate in a 5-minute survey that will allow the project team to identify the interests of the departments across Europe, in order to determine what expertise and resources are available for setting up and running clinical trials in this speciality. For further details and access to the survey itself, please click here.
Paediatric European Digestive Diseases Clinical Research Network – PEDDCReN
Tuesday, 12 November 2013 15:01
PEDDCReN is an exciting new initiative with the key aim of forming a clinical trials network to study (and ultimately provide) effective medicines for paediatric patients in the speciality of Gastroenterology, Hepatology and Nutrition. It was established with the support of LINKS funding from the UEG and is led by the BSG in collaboration with various European societies and ENPR-EMA (The European Network of Paediatric Research at the European Medicines Agency). The project will support both industry and non-industry investigators in running high quality multi-centre clinical trials and your involvement is welcome.
- Further information [ 89 kb ]
The transition of adolescents with chronic gastrointestinal disease from paediatric to adult care
Wednesday, 17 April 2013 06:55
Introduction: The transfer of care of patients with chronic conditions from paediatric to adult services is a time of risk for optimal disease control / adherence to medication / patient satisfaction and quality of life. Appropriate transition services aim to reduce the risk during the transfer of care by educating the patient and their family about the disease and its optimum management and providing a structure of care that reduces the risks discussed above. There are several chronic gastroenterological diseases that require appropriate transition including Inflammatory Bowel Disease, viral and autoimmune liver disease and chronic neuro-gastroenterological conditions.
Aim: To provide an evidence based guideline that documents the risks of poor transition, the benefits of appropriate transition, and assesses the available models of care. The guideline would be used by the entire MDT involved in the care of adolescents with chronic GI disease. Where evidence is not available the guideline will make consensus based recommendations.
Scope: There are currently no clinical guidelines that assess in detail the most appropriate means of transition for adolescents with chronic GI disease. Therefore the scope of this guideline would be to:
- Describe the patient populations
- Document the evidence defining the risks of poor transition
- Document the evidence that appropriate transition improves patient outcome
- Describe the available models
- Assess the evidence supporting use of specific models
- Review the patient perspective of transition
Participants: The guideline committee will have representation from:
- Adult and paediatric gastroenterology
- Adult and paediatric Hepatology
- Adult and paediatric GI surgery
- Adult and paediatric IBD nursing
- Professionals involved in transition in another disease area (eg rheumatology)
- Patient bodies such as Crohn's and Colitis UK
Methodology: The guideline will be produced in accordance with the AGREE document. Working groups will be established to address each sub section (ie IBD / Hepatology). A literature search will be performed; the quality of manuscripts would be assessed according to the SIGN criteria before they were accepted. Statements will be produced and evidence levels will be graded using the Oxford Classification of Evidence Based Medicine.
For the development of the transition guideline relevant questions on each of the topics will be devised by the Chairs and their working parties. The questions will focus on current practice and areas of controversy. In parallel, the working parties will perform a systematic literature search of their topic as above. Statements on each topic will be written by the Chairs, based on answers from their working party, as well as the literature evidence and will be circulated first among their working party and then among all participants.
All working parties will meet to agree the statements. Technically this will be done by projecting the statements and revising them on screen until a consensus was reached. Consensus will be defined as agreement by >80% of participants, termed a Consensus Statement and numbered for convenience in the document. Each recommendation will be graded (RG) according to the Oxford Centre for Evidence Based Medicine, based on the level of evidence.
The final document on each topic will be written by the Chairs in conjunction with their working party. Consensus statements in bold will be followed by comments on the evidence and opinion. Statements are intended to be read in context with qualifying comments and not read in isolation. The final text will be edited for consistency of style.
Dissemination: the guideline will be published in line with the BSG Guidelines Committee Publication Strategy
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