Paediatric European Digestive Diseases Clinical Research Network – PEDDCReN
PEDDCReN was an exciting new initiative with the key aim of forming a clinical trials network to study (and ultimately provide) effective medicines for paediatric patients in the speciality of Gastroenterology, Hepatology and Nutrition. It was established with the support of LINK funding from the UEG and was led by the BSG in collaboration with various European societies and ENPR-EMA (The European Network of Paediatric Research at the European Medicines Agency). The project supported both industry and non-industry investigators in running high quality multi-centre clinical trials. The final report has now been published.
- Further information [ 780 kb ]
HCV clinical trial and tissue biobank
HCV Research UK is a national cohort of over 11,000 patients enrolled between 2012 and 2014 from 60 centres within the UK with evidence of hepatitis C virus infection. All patients have enrolled with written informed consent, which allows storage of routinely collected clinical data in a linked-anonymised database, and have donated biological samples to a biorepository (held in Glasgow).
The purpose of HCV Research UK is to act as a resource to support research into a range of aspects of HCV infection.
Applications for access to data and/or samples may be made through the HCV Research UK Tissue and Data Access Committee through completion of an on-line application form.
Further details may be found at www.hcvresearchuk.org
IBD Nixon Twin and Multiplex Registry
UK gastroenterologists are invited to refer concordant and discordant twin pairs, as well as families where three or more first degree relatives have an IBD diagnosis, to the twin/multiplex registry. They will collect epidemiological data and invite members to donate blood, urine and stool samples to a biobank. This will become a powerful research resource that will be available for research collaborations in the future.
ENDCaP-C Study: Enhanced Neoplasia Detection and Cancer Prevention in Chronic Colitis
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