Clinical News

Latest IBD Registry data submission and site numbers

Thursday, 01 December 2016 10:21

As we approach the end of the year, the Registry team would like to thank all the IBD teams who have now joined the project for all their hard work. We've reached an important milestone in November with 20 sites now having submitted data, giving a total of 17,328 records. More records will be uploaded in December as we now have 44 teams who have completed their registration with NHS Digital. If you have data you’d like to upload and need any help at all please contact Mark at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Altogether, 176 IBD teams from across the UK have registered to participate, and there are 78 sites 'live' with a system for data capture, using a variety of different data entry methods (e.g. web tool, patient management system, local system etc). If you're in one of the teams that haven't yet registered please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it to find out more about joining in.

IBD Registry Update: Upload your patient data in November!

Monday, 31 October 2016 15:36

We are asking all sites that have any patient data live on a Registry-compatible system to upload their patient data to NHS Digital (HSCIC) during November. This is really important as the BSG Trustees will be assessing BSG support for the Registry/Audit in 2017 when they have their December 2016 meeting and we want to be able to show the good progress the Registry is making by reporting the maximum possible numbers of sites contributing and the numbers of patients in the central Registry. Every upload, even if the patient numbers on your database are relatively low, will help. Please ask for our support to do this if you need it - This e-mail address is being protected from spambots. You need JavaScript enabled to view it

IBD Registry: October Update

Monday, 03 October 2016 13:42

The final report produced by the UK IBD audit at the Royal College of Physicians has been published and data collection to support audit and quality improvement is moving to the IBD Registry. Teams can participate using a choice of data entry systems including existing local systems. Being part of the IBD Registry will give teams:

  • Local data to manage their biologics patients and IBD service more effectively
  • The chance to be part of ongoing national audit of the safety and appropriate use of biologics and biosimilars

In time the Registry will become a unique resource for real-world clinical effectiveness and health economic studies in IBD care. The goals for 2016/17 are:

  • Transfer data collection from the RCP biological therapy audit web tool, which will be closing, to the IBD Registry.
  • Develop a near-complete UK Register of IBD patients on biologics by the end of 2017

Over 160 teams have now registered to be part of the project. If you haven't registered yet and would like to, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Parliamentary Constituency (England) Liver Disease Burden Profiles

Monday, 03 October 2016 10:58

As part of its mission to increase awareness of liver disease amongst parliamentarians and policy makers the Lancet Commission for Liver Disease, of which the BSG is an active contributor, has been working to produce profiles of the burden of liver disease across England. The profiles have been customised to show data including Years of Life Lost, Mortality Rate and Hospital Admissions that is specific to each of the 533 parliamentary constituencies in England.

To view the profiles for your area please visit the Foundation for Liver Research website at the links below.

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