Clinical News

IBD Registry web tool launched

Thursday, 28 July 2016 08:23

We're delighted to announce that the web tool is now live, and the first sites are currently on track to be entering data by mid-August. We have secured the necessary permissions for hospitals in the devolved nations to access the Registry Web Tool through the N3 secure network. Outgoing president Ian Forgacs has called on all IBD teams to match the BSG's commitment to the Registry and safeguard its success by taking part, so if you're among the few who haven't registered to join yet, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Transition focus on biologics

To deliver local value to teams and patients, the steering group has proposed reporting on a set of 6 key performance indicators on biologics in 2016-17, with the aim of building a UK-wide register of all people receiving biological therapies for IBD by the end of 2017. The combined UK data will become a unique resource for real-world clinical effectiveness and health economic studies in IBD care.

IBD audit transition to IBD Registry

Friday, 01 July 2016 09:21

At the BSG annual meeting in Liverpool last week outgoing president Ian Forgacs praised the leaders of IBD Registry and called for all IBD teams in the UK to participate in the new programme for data capture and quality improvement using the IBD Registry.

Transition focus

This new programme is still on the quality accounts list and the national clinical audit and patient outcomes programme (NCAPOP) in England. The aim for the transition year is to report on 6 quality indicators for patients newly started on a biological therapy. This focus will enable the UK IBD clinical community to build the largest biologics registry in the world.

What to do next

If you haven't already done so, please register to be part of the programme using the form at http://ibdregistry.org.uk/wp-content/uploads/2016/05/Registration-Form-for-participating-in-the-IBD-Registry2.pdf.

You can participate using the data entry system that best meets your local needs and arrangements are slightly different in different parts of the UK. If you opt to use the web tool you'll be sent a starter pack once we've received your registration form.

Country System Next step
England Web Tool Complete web tool starter pack and return to This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Northern Ireland, Scotland and Wales Web Tool We are awaiting permission for data to flow across NHS England's N3 secure network. Once this is confirmed the IBD programme team will issue registered sites with web tool starter packs
UK wide PMS If the PMS is already installed at your hospital and you are collecting or about to start collecting data no action is required. If the PMS is not fully implemented at your hospital please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it
UK wide Third party systems: EMIS, Rotherham, Hospital EPR, other We ask that you ensure the IT system you intend to use is fully IBD Registry compliant. If your system is already established and you are collecting data, no action is required. If such a system is not yet implemented at your hospital or you wish to know more about what being Registry compliant means please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

If you have not yet registered to take part or would like more information on joining the IBD Registry please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

July data submission

The next scheduled IBD Registry data submission is at the end of July. If you are a site that has data that you would like to start submitting to the Registry, please email This e-mail address is being protected from spambots. You need JavaScript enabled to view it and he will support you in making the necessary arrangements.

Obesity Health Alliance Website Goes Live

Tuesday, 28 June 2016 08:23

The new Obesity Health Alliance website has now gone live. The goal of the Obesity Health Alliance is to prevent obesity-related ill-health by addressing the influences that lead to excess bodyweight throughout life. They bring together a range of leading organisations with expertise in tackling overweight and obesity. The Obesity Health Alliance was formed in 2015. They support policy-making to tackle the social, economic and cultural factors that contribute to obesity and the inequalities in health caused by obesity.

They have also launched a new Twitter account: @OHA_updates

Conference Report: Improving Outcomes for Gastrointestinal Cancer in the UK

Wednesday, 15 June 2016 08:21

On 7 December 2015, the British Society of Gastroenterology and the Royal College of Physicians held a joint conference: GI cancer in the UK: can we do better? The meeting was timely as, although outcomes for patients with most gastrointestinal cancers in the UK have steadily improved in the past 10 years, survival figures remain substantially worse than in many other comparable nations.

An extensive write up of the meeting, covering screening, early diagnosis, specific tumour sites and the interface between primary and secondary care were covered by leading UK experts.

This has been published in Frontline Gastroenterology and can be access through the link below.

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