Clinical News

UK National Screening Committee (UK NSC)

Friday, 02 September 2016 09:21

Stakeholder Conference 2016

Following the success of last year's inaugural event, this year's conference will be in London on Wednesday 14 December. As well as highlighting recent work of the UK NSC it will also mark the 20th anniversary since the committee was formed.

Confirmed speakers include:

  • Sir Muir Gray, the UK NSC's first Programme Director
  • Dr Angela Raffle, co-author of "Screening: Evidence and Practice"
  • Prof Bob Steele, new Chair of the UK NSC
  • Dr Anne Mackie, PHE Screening Director

IBD Registry Update: September 2016

Thursday, 01 September 2016 10:05

Local value of patient data - the Dorset experience

With the launch of the IBD Registry web tool last month, we're all set for every IBD team in the UK to join in, and to start to benefit from collecting useful local data to help deliver better patient care and support service development. Here Pearl Avery describes the approach she took to entering data on the PMS, involving patients in the process and the value of the information collected in the first ten months. This included being able to achieve CCG funding for the helpline for the first time in 20 years.

Over 160 teams have registered to be part of the project now. If you haven't registered to join yet, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

IBD Registry web tool launched

Thursday, 28 July 2016 08:23

We're delighted to announce that the web tool is now live, and the first sites are currently on track to be entering data by mid-August. We have secured the necessary permissions for hospitals in the devolved nations to access the Registry Web Tool through the N3 secure network. Outgoing president Ian Forgacs has called on all IBD teams to match the BSG's commitment to the Registry and safeguard its success by taking part, so if you're among the few who haven't registered to join yet, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Transition focus on biologics

To deliver local value to teams and patients, the steering group has proposed reporting on a set of 6 key performance indicators on biologics in 2016-17, with the aim of building a UK-wide register of all people receiving biological therapies for IBD by the end of 2017. The combined UK data will become a unique resource for real-world clinical effectiveness and health economic studies in IBD care.

IBD audit transition to IBD Registry

Friday, 01 July 2016 09:21

At the BSG annual meeting in Liverpool last week outgoing president Ian Forgacs praised the leaders of IBD Registry and called for all IBD teams in the UK to participate in the new programme for data capture and quality improvement using the IBD Registry.

Transition focus

This new programme is still on the quality accounts list and the national clinical audit and patient outcomes programme (NCAPOP) in England. The aim for the transition year is to report on 6 quality indicators for patients newly started on a biological therapy. This focus will enable the UK IBD clinical community to build the largest biologics registry in the world.

What to do next

If you haven't already done so, please register to be part of the programme using the form at http://ibdregistry.org.uk/wp-content/uploads/2016/05/Registration-Form-for-participating-in-the-IBD-Registry2.pdf.

You can participate using the data entry system that best meets your local needs and arrangements are slightly different in different parts of the UK. If you opt to use the web tool you'll be sent a starter pack once we've received your registration form.

Country System Next step
England Web Tool Complete web tool starter pack and return to This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Northern Ireland, Scotland and Wales Web Tool We are awaiting permission for data to flow across NHS England's N3 secure network. Once this is confirmed the IBD programme team will issue registered sites with web tool starter packs
UK wide PMS If the PMS is already installed at your hospital and you are collecting or about to start collecting data no action is required. If the PMS is not fully implemented at your hospital please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it
UK wide Third party systems: EMIS, Rotherham, Hospital EPR, other We ask that you ensure the IT system you intend to use is fully IBD Registry compliant. If your system is already established and you are collecting data, no action is required. If such a system is not yet implemented at your hospital or you wish to know more about what being Registry compliant means please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

If you have not yet registered to take part or would like more information on joining the IBD Registry please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

July data submission

The next scheduled IBD Registry data submission is at the end of July. If you are a site that has data that you would like to start submitting to the Registry, please email This e-mail address is being protected from spambots. You need JavaScript enabled to view it and he will support you in making the necessary arrangements.

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