Clinical News

Research - Role of primary care in PBC management: clinician perspectives needed

Thursday, 09 March 2017 11:36

The University of Birmingham and NIHR Birmingham Liver BRU in conjunction with UK-PBC are conducting research into perspectives of patients, GPs and specialists around PBC care and potential future changes including an increased role for primary care. We are looking for gastroenterologists and hepatologists in the West Midlands area to take part in qualitative interviews around the role of stratification. Please see advert below for further details or contact the study team led by Gideon Hirschfield for more details.

IBD Registry: March Headlines

Wednesday, 01 March 2017 10:25

IBD Registry 2017 Roadshow Dates Announced

  • MON 15th MAY EXETER
  • THURS 18th MAY CARDIFF
  • FRI 19th MAY SHEFFIELD
  • TUES 23rd MAY DARLINGTON
  • FRI 2nd JUNE LONDON
  • FRI 9th JUNE BIRMINGHAM
  • AUTUMN 2017 GLASGOW

A series of half-day meetings to support clinical teams as they join the IBD Registry. The sessions provide protected time for teams to learn about the Biologics Audit and QI programme using the IBD Registry, and to develop local plans for Registry adoption. Each meeting will be tailored to local needs and aim to provide information, support and hands-on guidance. Experts from the Registry will be on hand to answer questions, and interactive workshops will provide practical support for teams to work together to develop your own plans. Free to attend due to generous industry sponsorship. Register at http://ibdrroadshow2017.eventreference.com/

Registry Participation

Participation continues to grow, with 91 sites now set up to enter data into the IBD Registry, and over 24,600 patient records submitted. If you have not yet registered to participate in the IBD Registry, would like help uploading your data, or have any other registry related queries please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Quarterly Data Submission

The next quarterly data submission will be at the end of March. If you need any help at all in preparing for this, please contact Data Manager Mark Allan by emailing This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Trusts in England – 40% discount on audit subscriptions by 15th March

We've had an encouraging response to the request for subscriptions from Trusts in England to help the BSG maintain the Biologics Audit now that NHS England funding has been withdrawn.

At £2,500 per annum, the subscription is significantly less than the cost of one patient on biologics treatment for a year. Subscribers will receive benchmarked quarterly reports on the Biologics Audit KPIs focusing on quality improvement topics recommended in the last RCP Biologics Report. Later in the year, it is our intention to include reporting of HES data in relation to the Biologics data.

The BSG has offered to reduce the cost in the first year by 40% if a Trust provides a purchase order by 15th March 2017. We have written to the Chief Executives of all Trusts in England explaining the new arrangements for the Biologics Audit, putting the subscription cost in the context of overall expenditure on biologics for IBD, and reminding them that participation in the Audit is part of the NHS England Quality Accounts requirement.

Some teams have contacted us about submitting data to the IBD Registry if their Trust decides not to subscribe to the Audit. At present, you will still be able to submit data, but the Registry will not be able to provide the Trust with the benchmarked Biologics Audit reports. A copy of the letter to CEOs is available on request to This e-mail address is being protected from spambots. You need JavaScript enabled to view it

DID YOU KNOW?

  • Teams can participate in the IBD Registry using their own choice of data entry systems to suit local needs (including some existing local systems)
  • Being part of the IBD Registry will give teams:
    • Robust local data to manage their biologics patients and IBD service more effectively, efficiently and safely
    • Evidence to benchmark the quality of their service as part of a national audit of the safety and appropriate use of biologics

With our thanks for your continued contribution to the IBD Registry,

Dr Stuart Bloom, IBD Registry Chair & Dr Fraser Cummings, IBD Registry Clinical Lead

DATES FOR YOUR DIARY:

  • MON 15th MAY EXETER ROADSHOW
  • THURS 18th MAY CARDIFF ROADSHOW
  • FRI 19th MAY SHEFFIELD ROADSHOW
  • TUES 23rd or WED 24th MAY DARLINGTON ROADSHOW
  • FRI 2nd JUNE LONDON ROADSHOW
  • FRI 9th JUNE BIRMINGHAM ROADSHOW
  • WED 21 JUNE: IBD REGISTRY SYMPOSIUM AT BSG ANNUAL MEETING, MANCHESTER
  • AUTUMN: GLASGOW ROADSHOW
  • DECEMBER : Publication of the IBD Registry initial report

UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care

Thursday, 23 February 2017 11:47

Alenka J Brooks, Philip J Smith, Richard Cohen, Paul Collins, Andrew Douds, Valda Forbes, Daniel R Gaya, Brian T Johnston, Patrick J McKiernan Charles D Murray, Shaji Sebastian, Monica Smith, Lisa Whitley, Lesley Williams, Richard K Russell, Sara A McCartney, James O Lindsay

ABSTRACT

The risks of poor transition include delayed and inappropriate transfer that can result in disengagement with healthcare. Structured transition care can improve control of chronic digestive diseases and long-term health-related outcomes. These are the first nationally developed guidelines on the transition of adolescent and young persons (AYP) with chronic digestive diseases from paediatric to adult care. They were commissioned by the Clinical Services and Standards Committee of the British Society of Gastroenterology under the auspices of the Adolescent and Young Persons (A&YP) Section. Electronic searches for English-language articles were performed with keywords relating to digestive system diseases and transition to adult care in the Medline (via Ovid), PsycInfo (via Ovid), Web of Science and CINAHL databases for studies published from 1980 to September 2014. The quality of evidence and grading of recommendations was appraised using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) system. The limited number of studies in gastroenterology and hepatology required the addition of relevant studies from other chronic diseases to be included.

These guidelines deal specifically with the transition of AYP living with a diagnosis of chronic digestive disease and/or liver disease from paediatric to adult healthcare under the following headings;

  1. Patient populations involved in AYP transition
  2. Risks of failing transition or poor transition
  3. Models of AYP transition
  4. Patient and carer/parent perspective in AYP transition
  5. Surgical perspective
 

Thanksgiving service for Dr Basil C Morson

Wednesday, 22 February 2017 12:47

A service of thanksgiving will be held on Tuesday 2 May 2017 at 10.30 am at St James' Church, Spanish Place in London to commemorate the life and works of Dr Basil C Morson.

All are welcome to attend. Please indicate your intention to attend this Service, which will be fully choral with the Choir of St James' Church with Iestyn Evans, Director of Music to - This e-mail address is being protected from spambots. You need JavaScript enabled to view it (Subject - BCM Service)

This Service precedes the Scientific Meeting The Past, Present and Future of Colorectal Cancer: The Legacy of Dr Basil C Morson to be held later on 2 May 2017 at The Royal Society of Medicine from 1.00 pm.

Further details may be obtained from the RSM:
Tel - 020 7290 3941
Email - This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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