Clinical News

IBD Registry web tool launched

Thursday, 28 July 2016 08:23

We're delighted to announce that the web tool is now live, and the first sites are currently on track to be entering data by mid-August. We have secured the necessary permissions for hospitals in the devolved nations to access the Registry Web Tool through the N3 secure network. Outgoing president Ian Forgacs has called on all IBD teams to match the BSG's commitment to the Registry and safeguard its success by taking part, so if you're among the few who haven't registered to join yet, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Transition focus on biologics

To deliver local value to teams and patients, the steering group has proposed reporting on a set of 6 key performance indicators on biologics in 2016-17, with the aim of building a UK-wide register of all people receiving biological therapies for IBD by the end of 2017. The combined UK data will become a unique resource for real-world clinical effectiveness and health economic studies in IBD care.

National Clinical Director: Diagnostics at NHS England

Monday, 25 July 2016 10:14

The National Clinical Director (NCD) Diagnostics post is being offered on secondment to NHS England on a part time basis for a period of up to 3 years.

The role of the NCD is to provide clinical advice and leadership in four respects:

  • Clinical advice and leadership to drive transformation of services;
  • Clinical advice and leadership to support identification and delivery of our corporate clinical priorities (at national and regional level);
  • Clinical advice and leadership to support the commissioning of services; and
  • Clinical advice on ad hoc issues to support parliamentary accountability.

The successful candidate will take the clinical lead in driving improvement in the quality of services. As part of that the NCD will support policy and strategy teams in the successful design and delivery of a suite of tools to support system, professional and care pathway changes at a national and local level. The NCD will work collaboratively with others to ensure there is coherent commissioning guidance across CCG and specialised commissioned services. The NCD will also contribute to definition of the outcome measures by which clinicians and patients recognise services should be judged.

Closing date: 04/08/2016

Service standards for specialist paediatric gastroenterology, hepatology and nutritional support

Friday, 01 July 2016 09:38

New key service standards aim to reduce variations in care and improve the health outcomes and quality of care for infants, children and young people (ICYP) with gastroenterology, hepatology and nutritional disorders. We are now seeking examples of models and methods.

About

RCPCH and British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) are collaborating to develop the standards.

These aim to:

  • provide equity and quality of care for ICYP using gastroenterology and hepatology services and their parents and carers
  • inform commissioners / service planners and providers in designing and developing services
  • be used by inspectorates/regulators in inspecting services (including the Care Quality Commission)
  • ensure a smooth transition for children transitioning to adult specialist services
  • promote improved understandings of the interface between secondary and tertiary care.

The ultimate aim is to support the provision of high quality care as close to home as possible in networks and provide clarity for service providers and commissioners/service planners.

Call for evidence

We want to hear about your methods and innovative service models which have promoted equity and quality of care to patients. Your examples will help us progress to a managed clinical network.

Please email your examples by 18 July to This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

IBD audit transition to IBD Registry

Friday, 01 July 2016 09:21

At the BSG annual meeting in Liverpool last week outgoing president Ian Forgacs praised the leaders of IBD Registry and called for all IBD teams in the UK to participate in the new programme for data capture and quality improvement using the IBD Registry.

Transition focus

This new programme is still on the quality accounts list and the national clinical audit and patient outcomes programme (NCAPOP) in England. The aim for the transition year is to report on 6 quality indicators for patients newly started on a biological therapy. This focus will enable the UK IBD clinical community to build the largest biologics registry in the world.

What to do next

If you haven't already done so, please register to be part of the programme using the form at http://ibdregistry.org.uk/wp-content/uploads/2016/05/Registration-Form-for-participating-in-the-IBD-Registry2.pdf.

You can participate using the data entry system that best meets your local needs and arrangements are slightly different in different parts of the UK. If you opt to use the web tool you'll be sent a starter pack once we've received your registration form.

Country System Next step
England Web Tool Complete web tool starter pack and return to This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Northern Ireland, Scotland and Wales Web Tool We are awaiting permission for data to flow across NHS England's N3 secure network. Once this is confirmed the IBD programme team will issue registered sites with web tool starter packs
UK wide PMS If the PMS is already installed at your hospital and you are collecting or about to start collecting data no action is required. If the PMS is not fully implemented at your hospital please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it
UK wide Third party systems: EMIS, Rotherham, Hospital EPR, other We ask that you ensure the IT system you intend to use is fully IBD Registry compliant. If your system is already established and you are collecting data, no action is required. If such a system is not yet implemented at your hospital or you wish to know more about what being Registry compliant means please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

If you have not yet registered to take part or would like more information on joining the IBD Registry please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

July data submission

The next scheduled IBD Registry data submission is at the end of July. If you are a site that has data that you would like to start submitting to the Registry, please email This e-mail address is being protected from spambots. You need JavaScript enabled to view it and he will support you in making the necessary arrangements.

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