IBD Registry web tool launched
Thursday, 28 July 2016 08:23
Transition focus on biologics
To deliver local value to teams and patients, the steering group has proposed reporting on a set of 6 key performance indicators on biologics in 2016-17, with the aim of building a UK-wide register of all people receiving biological therapies for IBD by the end of 2017. The combined UK data will become a unique resource for real-world clinical effectiveness and health economic studies in IBD care.
- Download full update [ 43 kb ]
National Clinical Director: Diagnostics at NHS England
Monday, 25 July 2016 10:14
The National Clinical Director (NCD) Diagnostics post is being offered on secondment to NHS England on a part time basis for a period of up to 3 years.
The role of the NCD is to provide clinical advice and leadership in four respects:
- Clinical advice and leadership to drive transformation of services;
- Clinical advice and leadership to support identification and delivery of our corporate clinical priorities (at national and regional level);
- Clinical advice and leadership to support the commissioning of services; and
- Clinical advice on ad hoc issues to support parliamentary accountability.
The successful candidate will take the clinical lead in driving improvement in the quality of services. As part of that the NCD will support policy and strategy teams in the successful design and delivery of a suite of tools to support system, professional and care pathway changes at a national and local level. The NCD will work collaboratively with others to ensure there is coherent commissioning guidance across CCG and specialised commissioned services. The NCD will also contribute to definition of the outcome measures by which clinicians and patients recognise services should be judged.
Closing date: 04/08/2016
Service standards for specialist paediatric gastroenterology, hepatology and nutritional support
Friday, 01 July 2016 09:38
New key service standards aim to reduce variations in care and improve the health outcomes and quality of care for infants, children and young people (ICYP) with gastroenterology, hepatology and nutritional disorders. We are now seeking examples of models and methods.
RCPCH and British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) are collaborating to develop the standards.
These aim to:
- provide equity and quality of care for ICYP using gastroenterology and hepatology services and their parents and carers
- inform commissioners / service planners and providers in designing and developing services
- be used by inspectorates/regulators in inspecting services (including the Care Quality Commission)
- ensure a smooth transition for children transitioning to adult specialist services
- promote improved understandings of the interface between secondary and tertiary care.
The ultimate aim is to support the provision of high quality care as close to home as possible in networks and provide clarity for service providers and commissioners/service planners.
Call for evidence
We want to hear about your methods and innovative service models which have promoted equity and quality of care to patients. Your examples will help us progress to a managed clinical network.
IBD audit transition to IBD Registry
Friday, 01 July 2016 09:21
At the BSG annual meeting in Liverpool last week outgoing president Ian Forgacs praised the leaders of IBD Registry and called for all IBD teams in the UK to participate in the new programme for data capture and quality improvement using the IBD Registry.
This new programme is still on the quality accounts list and the national clinical audit and patient outcomes programme (NCAPOP) in England. The aim for the transition year is to report on 6 quality indicators for patients newly started on a biological therapy. This focus will enable the UK IBD clinical community to build the largest biologics registry in the world.
What to do next
If you haven't already done so, please register to be part of the programme using the form at http://ibdregistry.org.uk/wp-content/uploads/2016/05/Registration-Form-for-participating-in-the-IBD-Registry2.pdf.
You can participate using the data entry system that best meets your local needs and arrangements are slightly different in different parts of the UK. If you opt to use the web tool you'll be sent a starter pack once we've received your registration form.
|Northern Ireland, Scotland and Wales||Web Tool||We are awaiting permission for data to flow across NHS England's N3 secure network. Once this is confirmed the IBD programme team will issue registered sites with web tool starter packs|
July data submission
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