Clinical News

IBD Registry News – June 2017

IBD REGISTRY SYMPOSIUM AT BSG IN MANCHESTER

Join us in Manchester on Wednesday 21st June at 4.30-6pm for the first presentation of the biologics KPIs, as well as the latest news on research projects using the Registry. Chaired by Stuart Bloom and Barney Hawthorne, speakers include David Barker, Fraser Cummings, Mark Allan, Keith Bodger and Angel Castro Silva.

HELP SHAPE THE IBD REGISTRY REPORTS - LIVERPOOL UNIVERSITY SURVEY

Funded by Crohn's & Colitis UK, Keith Bodger and his team in Liverpool are working with the UK IBD Registry to develop data reports for IBD teams. The aim is to produce site level information to support local service planning, delivery and quality assurance. They'd like to get your views on some pilot data reports, and hope to present feedback during the IBD Registry Symposium at the BSG on Wednesday 21st June. Please follow the link below for more information and to provide your feedback on the draft reports: https://www.surveymonkey.co.uk/r/UKIBDR-Reporting

IBD REGISTRY 2017 ROADSHOW

The 2017 Roadshow has visited Exeter, Cardiff, Warrington and Darlington, reaching over 65 IBD doctors, nurses, audit leads and other team members. With a focus on practical information and action planning, the meetings are a chance to think and plan away from the hospital, as well as a chance to share experiences and tips. Delegate feedback suggests some key themes:

  • Seeing how the Registry can help teams to generate data that's useful locally, to drive service development or improve quality.
  • Getting a good understanding of different types of data entry systems.
  • Finding out how to get started, and where to find help when you need it.

There are still some places at Birmingham on Friday 9th June and the meeting is free to attend thanks to generous industry sponsorship, so if you'd like to join us, register now at http://ibdrroadshow2017.eventreference.com/

QUARTERLY DATA SUBMISSION

The next data submission deadline is 30th June, so please make sure that you submit all of your data for the period up to 31st May. If you need any help at all in preparing for this, or if you have not yet registered with NHS Digital, please email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

DATA ENTRY GRANTS - DEADLINE EXTENDED TO 17TH JUNE 2017

The deadline for data entry grant applications has been extended to 17th June, but priority will be given to those who have applied by the initial deadline of 17th May. Please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it for an application form. Applications need to be returned by 17th June 2017.

CALDICOTT GUARDIAN OPPORTUNITY

The Registry has a vacancy for a Caldicott Guardian to support all Information Governance aspects of the project. Please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it for more information.

DATES FOR YOUR DIARY:

  • FRI 2nd JUNE LONDON ROADSHOW
  • FRI 9th JUNE BIRMINGHAM ROADSHOW
  • WED 21 JUNE: IBD REGISTRY SYMPOSIUM AT BSG ANNUAL MEETING
  • AUTUMN: GLASGOW ROADSHOW
  • DECEMBER : Publication of the IBD Registry initial report