Clinical

IBD Biologics Audit and IBD Registry

The Biologics Audit

Almost half of UK IBD Audit sites have entered data into the biologics audit. Again I am most grateful to sites that have entered the data and I want to encourage those that have not. Firstly I would like to emphasise that this is a purely audit project and is not fulfilling the research aims of any group or individual. This is your data and we hope that by entering cases into the audit that you will get benefit from this.

We will be producing an interim national report on the biologics audit as part of the UK IBD Audit 3rd round which will be launched in June 2012 at the DDF meeting in Liverpool.

UK IBD Registry

The UK IBD Registry is currently being set up; Three areas of work are being progressed in between meetings of a full board containing representatives of all related professional groups:

  • Information Group developing the dataset and clinical benefits of the system
  • Governance Group looking into issues of confidentiality and consent
  • IT Group developing a specification and tender invitation

There has been regular communication with the other IBD projects, particularly the UK IBD Audit, and the importance of coordinating the development of the Registry with the current and next phase of the UK IBD Audit is recognised by everyone. The Registry system will be presented at DDF in June 2012 in Liverpool.

Drs Ian Arnott & Stuart Bloom